Hope

BalanceWear Improved Balance and Mobility in a Client with Multiple System Atrophy

Posted on December 11, 2015. Filed under: Be Your Best, Hope, Multiple System Atrophy, Physical Therapy, Postural Control, Quality of Life, Video Stories | Tags: , |

Lee Came to the US from the UK looking to try BalanceWear. He had been deteriorating quite a bit the past few months and had great difficulty walking and has balance and mobility issues.

Multiple System Atrophy (MSA) is a rare, incurable disease whose cause is unknown. It currently affects up to .02% of the US population, equally likely to occur in men and women across all ethnic groups. The disease tends to cause initial symptoms in the patient’s 50s, and then rapidly worsens over the course of five to ten years – the patient usually needs the support of an assistive device such as a cane or a walker after only a few years. The earliest symptoms of MSA are similar to the earliest symptoms of Parkinson’s disease; both often begin with slowness of movement, tremor, stiffness, incoordination, and impaired speech. Consequently, it is often difficult to distinguish MSA from Parkinson’s in its early stages. However, unlike Parkinson’s, whose movement-limiting symptoms are caused by the death of nerve cells in a specific, small region of the brain called the substantia nigra, the symptoms of MSA can reflect the death of multiple types of nerve cells in the brain and the spinal cord. Because of the variability in the types of cells that be affected within the MSA diagnosis, a patient’s symptoms generally are classified into one of two types: the parkinsonian type, with characteristics similar to Parkinson’s disease, and the cerebellar type, with characteristics including ataxia and loss of coordination. What both types have in common is a debilitating loss of mobility. Because there is no known cure for the underlying neurodegeneration of MSA, the focus of therapeutic care is on the improvement of the patient’s quality of life by slowing the loss of mobility.

Looks like Lee has new training wheels for the Holidays. We are wishing him the best of luck in his rehabilitation.

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MS Success Story

Posted on December 8, 2015. Filed under: Balance, Balance-Based Torso-Weighting, BalanceWear LSO, Hope, Lifestyle and wellness, Multiple Sclerosis Treatment, Physical Therapy, Postural Control, Quality of Life, Vestibular |

Yellowstone

Yellowstone


Interview: by Sean Noah
Daniela Lee was diagnosed with MS at age 40. The disease limited her mobility and hindered the active lifestyle that she previously enjoyed. But thanks to BalanceWear, she is surpassing the limitations of her diagnosis and reclaiming the activity and independence that she once took for granted.

How did you first hear about the vest as a potential therapy?
I read an article about the BalanceWear balance vest in the National MS Society’s quarterly newsletter. The article described how the vest could improve balance. Given the fact that balance loss was one thing that I had been suffering greatly from, that was enough to get me interested. I looked up the BalanceWear website, and reached out to Cindy.

What was the fitting session like?
Cindy Horn from Motion Therapeutics put me in touch with a very helpful Kaiser physical therapist in Richmond – Judith Fairchild. The fitting session was fast, but also uncomfortable at times – the initial pushing to assess my balance made me dizzy and very fatigued. I had to sit down and rest. Then she told me there were a couple more tests with the vest on. She moved the weights around to places that made sense according to my specific balance issues, and then said that she was going to push me again. I was already thinking “I don’t want to be pushed around again – it’s so uncomfortable!” But then she pushed me and it was a night-and-day difference. I was still a little wobbly, but I didn’t need to reach out and grab her; I was able to catch myself. By the time she finished the testing and figured out exactly where the weights should go, she could push me and I literally did not even move. I could just stand there. It was beyond what I was expecting! Furthermore, my dizziness and fatigue were both gone – I had recovered within ten minutes from my initial discomfort. It was a very positive experience with BalanceWear right away.

After the initial fitting session, how did you feel about BalanceWear?
I only wore the vest that first day for ten minutes in her office, but when I got home, the effects lasted all day. I was still walking at 11pm when my husband came home – I didn’t want to go to bed! My husband looked at me and said “you’re really walking normally, I can tell!” I was running up and down the stairs no problem. The next morning, the effects were slowly fading. From then on it was absolutely clear that BalanceWear was something I had to get. It was such an immediate effect. It was an incredibly powerful, life changing experience – I can’t describe it any other way. I felt like I was back to normal, back to how I used to walk. I’ve had issues walking, even before my diagnosis. To get walking back… people take walking for granted. It’s only when I couldn’t do it any more that I realized how important it was, for mobility, independence, and daily life.
What I realized later, once I got my own vest, was “I don’t have to think about how I’m going to take my next step.” Before, I had to map out my path, think about where I would place each foot for every step – even short 20-yard walks felt like the effort of climbing Mt. Kilimanjaro. But with BalanceWear, I feel like I have little motors in my feet.

How often do you wear the vest?
At the beginning, I was wearing it four hours a day. Pretty quickly I realized that I don’t have to wear it every day – I would still have residual positive effects the following day, so I started playing around with it. “How long will the effects last if I wear it for two hours? What about if I wear it every other day? When will I need to wear it next?” It blows my mind how it works, why it works, and how Cindy came up with the idea.

What is it like to wear the vest?
I can definitely tell when I’m wearing it, but it’s not cumbersome. It’s a positive feeling, because the plastic within the belt that goes over the front makes me feel strapped in – I feel that much more secure.
The only negative aspect is that in the summer it gets very warm because you’re strapped in and there isn’t much room for air to circulate. It can get uncomfortably warm. With MS, heat is one of the really negative outside influences – it brings on fatigue and dizziness, so even though the vest is countering your balance issues, you’re still dealing with the dizziness and the fatigue. A lighter vest would solve this problem.

What are you able to do now that you weren’t able to do before BalanceWear?
BalanceWear has absolutely given me a new sense of confidence in my abilities and my potential. I do still have symptoms that are not related to balance, and I’m aware that the vest is not going to fix those – it’s not a panacea. But I can walk normally, even jog. Before, jogging was not possible, but now, I can jog almost a half mile. I can go downtown to the farmers’ market and get what I need, without having to rest in the car for ten minutes before and after walking around. It’s such a simple thing, but believe me, it’s a big step forward.
What advice would you give to people wondering if BalanceWear is right for them?
Get assessed. Try it out, even if just in the PT’s office. You might feel right away if it makes sense for you or not.
I’m very open about my experience with BalanceWear and MS. If people want to get in touch with me, they are welcome to reach out to me, and I’d be happy to talk to them.

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PT Month Day 20: Sandra Jo Rampy – MS Activist – Is Running Again With BalanceWear

Posted on October 21, 2014. Filed under: Achievements, BalanceWear LSO, Exercise, Hope | Tags: , , , , |

Sandra Jo Rampy has been an avid runner and athlete her whole life and has not let a diagnosis with MS stop her. When she was diagnosed in 2002 she began setting fitness goals for herself and never gave up on her body. Today she is Chief Encouragement Officer of the Rampy MS Research Foundation (http://researchms.org/ ), an organization run by Sandra Jo and her husband Scott. Part of what keeps Sandra Jo going is BalanceWear. BalanceWear has improved her balance and stability and she calls it a life changer. This week, for the first time in 6 years, Sandra Jo will be traveling and navigating a busy airport independently thanks to her new found stability and confidence using BalanceWear. Congratulations Sandra Jo! We hope you have a wonderful trip Below is a video of Sandra Jo taking a jog in her backyard. Before BalanceWear, she was unable to control her body while jogging and had difficulty coming to a stop. She now has a smoother gait and much more control. We are so happy to see her success! https://www.facebook.com/video.php?v=884871554870422&set=vb.127437677280484&type=2&theater See how this activist is helping those with MS Website: http://researchms.org/ Facebook: https://www.facebook.com/researchms Twitter: @Research_MS

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National PT Month Day 4

Posted on October 4, 2014. Filed under: Balance, Be Your Best, Elderly, Falls, Hope, Success Stories, Video Stories |

Wow I was sent a link to a great blog! So I have MS Now What. Please take a look at what all Catherine has to say! http://soihavemsnowwhat.wordpress.com/ Oh Happy Day..Thank you Catherine

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Cerebellar Degeneration – BalanceWear – Walking – Walking and More Walking

Posted on July 30, 2014. Filed under: Cerebellar Degeneration, Hope |

Terry with Cerebellar Degeneration: Her Steps to Freedom
Diagnosis: Cerebellar Degeneration.

Terry was discharged from physical therapy because she was not making progress. Her doctor told her she would remain in the wheelchair for life.

Terry did not want to accept this. Searching for ideas and treatment on the web she came across Motion Therapeutics and BalanceWear.

She went to see Andy Lesher MSPT in Bala Cynwyd, PA. Terry received BalanceWear in July 2013. The first treatment with BalanceWear and Balance-Based Torso-Weighting Terry obtained the ability to sit and stand without support for the first time in a long time.

Terry began walking with the assist of her partner. She stated “I couldn’t stop when I walked. I had no control. I would fall and my partner had to catch me.”

But..that didn’t stop Terry.

After a few months, Terry was walking with two hiking poles and a helmet and BalanceWear everyday around the neighborhood. In addition to further physical therapy and BalanceWear Terry related she did the following activities. “Tong Ren, Tai Chi, Chi Gong, Acupuncture, Reiki, Massage, Vitamins. Prayer, and Aqua Therapy. I had a positive attitude and motivation, visualization exercises, and walking, walking, walking and
walking some more with My SUPER VEST!!!!!!!”

Talk about task practice! In physical therapy we talk about training a person in the tasks they need to succeed with a mass practice.

By September (5 months later) Terry was able to walk with one hiking pole.
By November (6 months later) she started walking without any hiking poles but still wearing her BalanceWear. She continued to walk for 500 miles over the next 4 months. (That’s like 5 miles per day) The video attached to this story documents six months of her work. At 9 months she travels to the Grand Canyon and hikes in the foothills of Sedona, Arizona.

Terry has taught us a lot!

1. How much work it takes to change control.

2. Constant BalanceWear wear and walking helped her achieve what her
doctor said she never would.

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