Cerebellar Degeneration

“You Got This Now Live With It” Really!

Posted on December 2, 2015. Filed under: Achievements, Ataxia, Balance, Balance-Based Torso-Weighting, Cerebellar Degeneration, Falls, Quality of Life, Success Stories |

Why is it that some physicians feel the need to tell their patient you got this now live with it..there is no hope. What happened to the oath.. First do no harm? By telling someone they will not get better leads patients down a road that they and their families have do not want to go. as professionals we need to be honest. The fact is that many practitioners have not sought out alternative treatment.

In my video of Luke one can see that there is hope and improved function! November 20
Luke came to the US from the UK. The video shows improvement over 4 months.

Why is it that the medical profession feels the need to always cure a disease at the loss of research dollars working on treatments for patients that help them live better? We have research in MS. BalanceWear treats Balance dysfunction; not MS. Anyone with a Balance dysfunction may be helped.

BalanceWear Therapy has helped many people live better, fall less, and have more productive lives.

Why is it that our professions have relied only on evidence that only works in research. Research doesn’t look at the whole patient. It looks at a bunch of people who are not the same and only looks at certain measures researchers think COULD improve.

This is not life. We as clinicians tailor our programs for EACH person.

Please …..Do not let someone tell you to live with it until you have tried other treatments especially BalanceWear. I have heard patients from all over the world tell me no one could help them… They have been helped.

If someone can do something just a little better that is progress. Life can be very difficult for patients suffering with disability. Let’s try to make it easier

Cindy

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Practice makes Perfect…No Perfect Practice makes Perfect

Posted on January 13, 2015. Filed under: Ataxia, Balance, Balance-Based Torso-Weighting, Cerebellar Degeneration, Falls, Neuroplasticity, Postural Control |

Here is an article about practicing strokes in tennis and the follow through movement making a difference in learning. Practice and repetition is associated with neural changes in the brain. How we practice makes a big difference. In the patient world and for those with disability BalanceWear can provide the balance control needed to practice correct movement. In some cases patients do not realize what is changing and can not feel the difference. An example I noted recently; a patient with cerebellar degeneration did not really feel the difference BalanceWear made in their walking however other people did. Every time she walked she her feet hit her walker because they were so far out to the side in wide base support. When she was wearing BalanceWear her legs were underneath her and did not hit the side of the walker during gait. She said she falls daily even in her walker. Why? Because she trips herself on the walker. She did not feel the difference with her legs underneath her but she is less likely to trip on the walker. Walking with her legs underneath her with a better base of support for many miles over the next several months should provide improved control as the brain learns more accurate movement.
http://www.medicalnewstoday.com/releases/287836.php?tw

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International Ataxia Awareness Day

Posted on September 23, 2014. Filed under: Ataxia, Balance, Cerebellar ataxia, Cerebellar Degeneration, Falls, Spinal Cerebellar Ataxia |

This video link is great. Watch all the videos. They are powerful.

Have a great week. Be safe.
Cindy

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Falls and Emotion

Posted on August 26, 2014. Filed under: Articles, Ataxia, Balance, Cerebellar ataxia, Cerebellar Degeneration, Falls, Postural Control, Spinal Cerebellar Ataxia |

Yesterday a gentleman asked why his wife falls when she becomes upset; such as in an argument.
I told him many people have to use all their cognitive resources to stay upright. When they are distracted from concentrating on their balance they fall or stumble.

Do you fall when you are distracted?

I searched on the internet but didn’t find exactly what I was looking for but found this very descriptive article on Cognition, Emotion and the Cerebellum

emohttp://www.ataxia.org/pdf/generations_articles/Cognition,%20Emotion%20and%20Cerebellum_Schmahmann_Summer%2009.pdf

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Cerebellar Degeneration – BalanceWear – Walking – Walking and More Walking

Posted on July 30, 2014. Filed under: Cerebellar Degeneration, Hope |

Terry with Cerebellar Degeneration: Her Steps to Freedom
Diagnosis: Cerebellar Degeneration.

Terry was discharged from physical therapy because she was not making progress. Her doctor told her she would remain in the wheelchair for life.

Terry did not want to accept this. Searching for ideas and treatment on the web she came across Motion Therapeutics and BalanceWear.

She went to see Andy Lesher MSPT in Bala Cynwyd, PA. Terry received BalanceWear in July 2013. The first treatment with BalanceWear and Balance-Based Torso-Weighting Terry obtained the ability to sit and stand without support for the first time in a long time.

Terry began walking with the assist of her partner. She stated “I couldn’t stop when I walked. I had no control. I would fall and my partner had to catch me.”

But..that didn’t stop Terry.

After a few months, Terry was walking with two hiking poles and a helmet and BalanceWear everyday around the neighborhood. In addition to further physical therapy and BalanceWear Terry related she did the following activities. “Tong Ren, Tai Chi, Chi Gong, Acupuncture, Reiki, Massage, Vitamins. Prayer, and Aqua Therapy. I had a positive attitude and motivation, visualization exercises, and walking, walking, walking and
walking some more with My SUPER VEST!!!!!!!”

Talk about task practice! In physical therapy we talk about training a person in the tasks they need to succeed with a mass practice.

By September (5 months later) Terry was able to walk with one hiking pole.
By November (6 months later) she started walking without any hiking poles but still wearing her BalanceWear. She continued to walk for 500 miles over the next 4 months. (That’s like 5 miles per day) The video attached to this story documents six months of her work. At 9 months she travels to the Grand Canyon and hikes in the foothills of Sedona, Arizona.

Terry has taught us a lot!

1. How much work it takes to change control.

2. Constant BalanceWear wear and walking helped her achieve what her
doctor said she never would.

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