Be Your Best

BalanceWear Improved Balance and Mobility in a Client with Multiple System Atrophy

Posted on December 11, 2015. Filed under: Be Your Best, Hope, Multiple System Atrophy, Physical Therapy, Postural Control, Quality of Life, Video Stories | Tags: , |

Lee Came to the US from the UK looking to try BalanceWear. He had been deteriorating quite a bit the past few months and had great difficulty walking and has balance and mobility issues.

Multiple System Atrophy (MSA) is a rare, incurable disease whose cause is unknown. It currently affects up to .02% of the US population, equally likely to occur in men and women across all ethnic groups. The disease tends to cause initial symptoms in the patient’s 50s, and then rapidly worsens over the course of five to ten years – the patient usually needs the support of an assistive device such as a cane or a walker after only a few years. The earliest symptoms of MSA are similar to the earliest symptoms of Parkinson’s disease; both often begin with slowness of movement, tremor, stiffness, incoordination, and impaired speech. Consequently, it is often difficult to distinguish MSA from Parkinson’s in its early stages. However, unlike Parkinson’s, whose movement-limiting symptoms are caused by the death of nerve cells in a specific, small region of the brain called the substantia nigra, the symptoms of MSA can reflect the death of multiple types of nerve cells in the brain and the spinal cord. Because of the variability in the types of cells that be affected within the MSA diagnosis, a patient’s symptoms generally are classified into one of two types: the parkinsonian type, with characteristics similar to Parkinson’s disease, and the cerebellar type, with characteristics including ataxia and loss of coordination. What both types have in common is a debilitating loss of mobility. Because there is no known cure for the underlying neurodegeneration of MSA, the focus of therapeutic care is on the improvement of the patient’s quality of life by slowing the loss of mobility.

Looks like Lee has new training wheels for the Holidays. We are wishing him the best of luck in his rehabilitation.

Read Full Post | Make a Comment ( None so far )

Testimonial from Thorkild Who has Ataxia

Posted on October 23, 2014. Filed under: Achievements, Ataxia, Balance, Balance-Based Torso-Weighting, BalanceWear - About Cindy, BalanceWear LSO, Be Your Best, Cerebellar ataxia, Elderly, Falls, Head Injury, Quality of Life |

THORKILD ERRITZØE
Generalkonsul

E-mail: thorkild@erritzoe.com

TESTIMONIAL
Personal information

Man born in 1935 in Denmark.
Diagnosis: Cerebellar Ataxia
My sickness started slowly back in 2003.
The following 4 years my gait became increasingly worse and I started having speaking problems – especially in the mornings.
Treatment: absolutely nothing ! The neurologist at the Copenhagen University Hospital told me that there was no cure. It was a progressive sickness and the only hope was that due to my age the sickness would most likely develop slowly over the years.

I had to change my living from a big house with many staircases to a protected apartment. My walking problems became beyond endurance with daily falls and lots of injuries as a consequence.
Finally – spring 2013 I was instructed not to walk at all, and was submitted to a wheelchair. Doctor’s order ! By ordering this the doctors would for any reason avoid further injuries to me by falling.
This enormous change in my life style resulted in serious depression, which lasted about 2 months.

Motion Therapeutics (MT)

In my daily investigations in medical literature and information found on the internet I came across a publication from MT offering a balancewear vest.

The problem was that I had to travel to USA if I wanted a vest. I therefore started a market research within the international medical field in order to get more information about the vest. My sister is a doctor, and she helped me in my investigation.
I was in contact with the neurologists at the Copenhagen University Hospital, the University Hospital in Munich, Germany (professor Thomas Brandt who had diagnosed me), the Ataxia Foundation of Denmark and the Ataxia Foundation of UK.

Unfortunately I only received negative feedback. Many had heard about the balance vest but no one believed in its ability to stabilize these types of balance problems.

Meeting with Cindy Gibson-Horn (CGH) – inventor of the vest

Despite all the bad publicity I had obtained I finally decided to try to get an appointment with CGH in San Francisco. She was most obliging and asked me to have a video taking of my gait and send it to her along with the official diagnosis of my sickness.

In spite of my handicap – SAS and my daughter brought me in my wheelchair to the clinic of CGH in San Francisco. It took place October 2013, and it goes without saying, that Cindy (CGH) really took excellent care of me from the moment I “rolled” into her clinic. My daughter and I were

impressed by the efficiency and professionalism of her performance. After having pushed me around and tried to get me totally out of balance for some time, Cindy said the fantastic and unbelievable words “You don’t have to sit in a wheelchair”.

Cindy then started building up a vest, which would suit me and help me in keeping my balance no matter what kind of exercise I performed. We are not only talking about normal walking but I should also walk backwards and to the sides, pick up things from the floor, reach up for things far beyond my natural height etc.

Having “worked” with me for a couple of hours and placed all kind of weights in my vest on various places on my back, shoulder, stomach and front, Cindy told me that she had finished the job and I could start walking. First I tried within the parallel bars, and here I walked normal without falling to the sides or crossing my feet. Then I asked whether I was allowed to try to walk up and down the hall space ?

“You just try”, Cindy said. For everyone who have seen my gait before such as my daughter, we experienced a miracle. I walked without any problems, and I was even able to look to the sides when walking, which I haven’t been able to do for years.

Having embraced and thanked Cindy for the incomprehensible help I walked out of her clinic – leaving my wheelchair behind.

Upon my return to Denmark I swore that I would do my best in order to arrange that BalanceWear would be introduced to the Scandinavian market in order to help other people with balance problems.

If everything goes according to plan I am happy to announce that as from June 2015
Motion Therapeutics, BalanceWear will be available in all Scandinavian countries.

Wonderful! Not only Scandinavians but also other Europeans will then only have to go to Skodsborg Physiotherapy in Denmark avoiding the long travel to USA. If they are successful most likely MT will also have other representatives appointed in more European countries.

I have deliberately postponed this testimonial for half a year. I suppose that everyone will understand that in the beginning I could hardly believe that all of a sudden I was ”brought back to life”. I am so happy to report that since Cindy put on my vest I have become even better. In my home I am now frequently able to walk without the vest and my handwriting and speech have improved. I am more capable to use my computer, and someone might even claim that my intellectual faculties have improved.

On top of all this I am so happy to report (knock the wood) that I haven’t fallen one single time since Cindy put on my vest.

All in all a SUNSHINE STORY. Apart from what I have stated in this testimonial I am only too glad to receive inquiries from interested people. My mail address is: thorkild@erritzoe.com

FINAL PRAISE to CINDY:
Congratulation Cindy for inventing your simple solution to an extremely complex problem, a mechanical balancing of one biologically very complicated imbalance.

Thorkild Erritzøe
Skodsborg, Denmark – March 16, 2014

Thanks Thorkild!
cindy

Read Full Post | Make a Comment ( None so far )

National PT Month Day 6 Dizziness and Vertigo

Posted on October 6, 2014. Filed under: Balance, Be Your Best, Dizziness, Exercise, In the news, Vertigo, Vestibular |

Dizziness can come from central or peripheral vestibular problems. Try this to see if it will help with peripheral vestibular problems.
http://denver.cbslocal.com/2012/04/23/colorado-doctor-finds-way-to-treat-common-vertigo/#.U8UowMQ93xM.facebook

Read Full Post | Make a Comment ( None so far )

National PT Month Day 4

Posted on October 4, 2014. Filed under: Balance, Be Your Best, Elderly, Falls, Hope, Success Stories, Video Stories |

Wow I was sent a link to a great blog! So I have MS Now What. Please take a look at what all Catherine has to say! http://soihavemsnowwhat.wordpress.com/ Oh Happy Day..Thank you Catherine

Read Full Post | Make a Comment ( 1 so far )

Choosing a Physical Therapist

Posted on October 2, 2014. Filed under: Be Your Best, Physical Therapy, Quality of Life |

How to choose

From American Physical Therapy Association You are the most important member of your own health care team, and you are entitled to choose the most appropriate health care professional to meet your goals. The American Physical Therapy Association (APTA) has provided the following guidelines for choosing a physical therapist for your care.

Freedom of Choice

You have the freedom to choose your own physical therapist. Most states allow you to go directly to a physical therapist without getting a physician’s referral first. Currently, 46 states allow people to go directly to a physical therapist without a physician’s referral (all but Alabama, Indiana, Michigan, and Oklahoma).

Keep in mind that your insurance policy may require a visit to the primary care physician first or may limit your access to preferred providers only.

Your physician may refer you for physical therapy that is to be provided in the physician’s office, or to a facility in which the physician has a financial interest. If this is your situation, be aware that you have the right to choose your own physical therapist and that you are not obligated to receive physical therapy in any specific facility. Always insist that your physical therapy be provided by a licensed physical therapist.

Physical therapists who are members of APTA are bound by the Association’s Code of Ethics and are especially committed to providing competent and compassionate care.

How to Choose a Physical Therapist

The guidelines below are great. If you are looking for a therapist who practices Balance-Based Torso-Weighting please call 888-330-2289

Make sure that you receive physical therapy from a licensed physical therapist. Physical therapists are professional health care providers who are licensed by the state in which they practice. If you are receiving physical therapy from a physical therapist assistant, be sure that he or she is supervised by a licensed physical therapist.

Ask the physical therapist’s clinic if it participates with your insurance company. Receiving care from a participating physical therapist should minimize your financial responsibility. There may be good reasons, however, to see a physical therapist who does not participate with your insurance plan. If you need a physical therapist who has special skills related to your particular condition-or if the location or other aspects of the care or the facility meet your needs-this may be a good choice for you.

Ask whether the physical therapist’s clinic will submit claims on your behalf to your insurance company. Some policies require copayments for services, and the amount of the copayment will depend on whether the physical therapist is part of the insurer’s provider network. You also will have to meet your deductible. Your physical therapist’s clinic should be able to help you calculate an estimate of your financial responsibilities.

Use Find A PT to locate a physical therapist in your area. Read an explanation of physical therapist degrees and credentials (PT, DPT, FAPTA, etc) in Adobe PDF.

Not all therapists are trained in Balance-Based Torso-Weighting or recognize this treatment. They will in time. Please refer them to our website and do not let them tell you you are not appropriate if they do not know what it is.

LikeLike · · Share..

..

Boost Post.

Read Full Post | Make a Comment ( 2 so far )

Happy National Physical Therapy Month

Posted on October 1, 2014. Filed under: Be Your Best, Exercise, Physical Therapy |

It’s National Physical Therapy Month!

What does that mean to me?

It is a time to reflect on what I feel as a physical therapist for over the past thirty years.
I have been blessed with the best career ever. How many of us can go home feeling we made a difference in someone’s life on a daily basis. I can.

Physical therapy has allowed me to be a professional, have a career, and raise a family.

Physical therapy is stimulating. There is new research coming out all the time with new methods and technology to try giving us many tools in our pockets if we choose to use them. We can switch paths mid-career if we want a change. There are so many places to practice physical therapy. We just need to find the right place for us to be fulfilled.

This month I will be featuring different aspects of physical therapy that you might find interesting.

Some of it will be on Balance-Based Torso-Weighting and others will be from the American Physical Therapy Association. My goal is to inform and spread the word that physical Therapists can help you. Please take this opportunity to check back every day or so this month…I am going to try to blog/ FaceBook daily about PT.

Read Full Post | Make a Comment ( 1 so far )

Self Satisfaction

Posted on June 11, 2014. Filed under: Balance-Based Torso-Weighting, BalanceWear - About Cindy, Be Your Best, Quality of Life, Success Stories, Uncategorized |

What brings you self-satisfaction?

To me, it is to know I have made a difference.

A difference in how a therapist treats a patient.

A difference in how one of our instructors trains other therapists to make a difference.

Today – There is a young woman who was in a car accident two years ago who had been in a coma and was in rehab for a long time. She received a free BalanceWear garment via a grant for ataxia.

This young lady will walk to get her high school diploma in So Cal. I am so proud of her even though I do not know her. Her parents will be so happy!

Last week In Kentucky a therapist worked with a young mother of two with MS who needed a walker. Once she had tried Balance-Based Torso-Weighting and BalanceWear was provided she didn’t need the walker. This will help her so much in taking care of her children and running the home.

Self Satisfaction…..
For me it is when I hear about what my invention and intervention does to help others. It gives me a deeps sence of contentment. Better than Yoga! SMILE;)

Read Full Post | Make a Comment ( 2 so far )

New Year, New ME, New You

Posted on January 7, 2014. Filed under: Be Your Best, Quality of Life |

152014 260

Starting this year I am interested in adding features about improving overall quality of life and helping you to be the best that you can be. We often become complacent; go to the same restaurant, same park, doing all the things that we typically do… or just stay in and watch TV. If you knew you only had a few years left to live would that be good enough for you? If so you are happy.

For me I want to experience more. There are so many areas in the Bay Area where I live. The picture that I took was from Point Reyes walking down to the light house. In the Sunday Chronicle a few weeks back it mentioned the whales were migrating back through the area. We went to take a look. Yup we saw six of them and new seal pups, deer and elk! We went with friends and ended up having a nice picnic at Drakes Bay. Getting out in the fresh air, breathing in deeply and enjoying the views refreshes my soul. I plan on going to many more sites this year. How about you? What will you be doing? I hope you enjoyed the vista.

Here’s to a great 2014! Can’t wait to hear where the BalanceWear Vest Travels. I will be posting what people tell me. Can’t wait to hear what 2014 brings to everyone!

Read Full Post | Make a Comment ( None so far )

National Physical Therapy Month

Posted on October 11, 2013. Filed under: Balance-Based Torso-Weighting, Be Your Best, Elderly, Exercise, Quality of Life, Success Stories |

2013 Shiela tree poseI have asked people to comment on what they are doing with BalanceWear. As you all know I am the creater of Balance-Based Torso-Weighting and the product BalanceWear.

I have received some very nice reponses. Here is one.

“I’m an active 69-year-old woman who was diagnosed in 2008 with a “significant (25%) relative loss of peripheral vestibular sensitivity in the right inner ear labyrinth … ” The imbalance I felt didn’t get in the way of my enjoying a wide range of activities – hiking, biking, walking, yoga, Zumba and rowing, but I always noticed being out of balance. I felt concern that my balance might be worsening and that I could have serious balance issues as I aged. I was fitted for a BalanceWear garment in July and noted changes on the spot. I was delighted that I could easily do a Tree Pose wearing the vest, and this was not the case when I walked into Cindy’s office. Over the next 3 weeks, I tested myself in a couple of areas while wearing the vest, then recorded the results to see if improvement was real or imagined. The better and better numbers told me it was real. Three months later, after wearing the vest for 3-5 hours for about 4-5 days a week, I thought I’d do another test for fun. I was amazed that I can do many of the “test” activities quite well without the vest. My brain continues to build new pathways for balance. The best result has been a noticeable improvement in my rowing, which takes the form of sculling in a single boat. I’ve been going to a rowing camp every year for 7 years, and it includes an informal race at the end of the week. In September, I rowed my fastest time ever, and it was with less effort than in prior years. I believe that I’m faster because I have a more efficient stroke, and I attribute that to improved balance and the fact that my brain isn’t constantly working to stabilize me in the boat. I’m looking forward to the possibility of new, streamlined models of the BalanceWear garment!”

Obviously I am delighted!

Cindy

Read Full Post | Make a Comment ( None so far )

Liked it here?
Why not try sites on the blogroll...