Achievements

“You Got This Now Live With It” Really!

Posted on December 2, 2015. Filed under: Achievements, Ataxia, Balance, Balance-Based Torso-Weighting, Cerebellar Degeneration, Falls, Quality of Life, Success Stories |

Why is it that some physicians feel the need to tell their patient you got this now live with it..there is no hope. What happened to the oath.. First do no harm? By telling someone they will not get better leads patients down a road that they and their families have do not want to go. as professionals we need to be honest. The fact is that many practitioners have not sought out alternative treatment.

In my video of Luke one can see that there is hope and improved function! November 20
Luke came to the US from the UK. The video shows improvement over 4 months.

Why is it that the medical profession feels the need to always cure a disease at the loss of research dollars working on treatments for patients that help them live better? We have research in MS. BalanceWear treats Balance dysfunction; not MS. Anyone with a Balance dysfunction may be helped.

BalanceWear Therapy has helped many people live better, fall less, and have more productive lives.

Why is it that our professions have relied only on evidence that only works in research. Research doesn’t look at the whole patient. It looks at a bunch of people who are not the same and only looks at certain measures researchers think COULD improve.

This is not life. We as clinicians tailor our programs for EACH person.

Please …..Do not let someone tell you to live with it until you have tried other treatments especially BalanceWear. I have heard patients from all over the world tell me no one could help them… They have been helped.

If someone can do something just a little better that is progress. Life can be very difficult for patients suffering with disability. Let’s try to make it easier

Cindy

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Interview About How BalanceWear Got Started

Posted on July 30, 2015. Filed under: Achievements, Balance, Balance-Based Torso-Weighting, BalanceWear - About Cindy, Exercise class, In the news, Physical Therapy |

http://privatepracticebusinessacademy.com/cindy-gibson-horn/

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Falls In MS Can Be From Pushing Too Hard

Posted on June 9, 2015. Filed under: Achievements, Balance, Balance-Based Torso-Weighting, Multiple Sclerosis Treatment, Neuroplasticity |

boyd boyd 1

Boyd-I’m wearing BalanceWear® daily and still find it effective. Actually, what I should say is that I find it MORE effective: it’s nearly 3 months now, and some days I forget to put it on for a while and yet still notice the improvements. The brain plasticity kicking in, I guess.

Cindy- When you are able to do a task without the vest over time your brain has made a new connection. Neurons that fire together wire together. This is neuroplasticity.

Boyd- I’ve had a couple of falls, but no broken bones. They’ve come at the end of long walks, so I put it down to leg fatigue more than anything else. The falls have come after pushing it a bit too far (3 miles again) and then losing it on a sloping path. I’ve since reduced the walks to less than 2 miles (3 k) and will gradually increase.

Cindy- Boyd this is great. Learning what you do and how it affects your body is an important lesson. People with MS need to know when they are starting to get fatigued and listen to the body. I am sorry you had a few falls but glad you didn’t get hurt. By cutting back a bit and allowing your body to gain endurance before taking on longer walks will help in the long run.

Boyd- I got myself a couple of walking poles and have learned that the technique of Nordic Walking is a very particular method. To learn it, I have been going to a neuro Physio at a rehab center who specializes in MS and also in Nordic Walking. Only had a couple of sessions so far, I am already feeling the benefits.
Hiking poles can be difficult to master however after one does and uses reciprocal arms and legs movements are the closest to our regular walking pattern.

Cindy- Glad to hear you are working with a therapist as they can guide your best ability. BalanceWear gives many people like yourself a new starting point.

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Testimonial from Thorkild Who has Ataxia

Posted on October 23, 2014. Filed under: Achievements, Ataxia, Balance, Balance-Based Torso-Weighting, BalanceWear - About Cindy, BalanceWear LSO, Be Your Best, Cerebellar ataxia, Elderly, Falls, Head Injury, Quality of Life |

THORKILD ERRITZØE
Generalkonsul

E-mail: thorkild@erritzoe.com

TESTIMONIAL
Personal information

Man born in 1935 in Denmark.
Diagnosis: Cerebellar Ataxia
My sickness started slowly back in 2003.
The following 4 years my gait became increasingly worse and I started having speaking problems – especially in the mornings.
Treatment: absolutely nothing ! The neurologist at the Copenhagen University Hospital told me that there was no cure. It was a progressive sickness and the only hope was that due to my age the sickness would most likely develop slowly over the years.

I had to change my living from a big house with many staircases to a protected apartment. My walking problems became beyond endurance with daily falls and lots of injuries as a consequence.
Finally – spring 2013 I was instructed not to walk at all, and was submitted to a wheelchair. Doctor’s order ! By ordering this the doctors would for any reason avoid further injuries to me by falling.
This enormous change in my life style resulted in serious depression, which lasted about 2 months.

Motion Therapeutics (MT)

In my daily investigations in medical literature and information found on the internet I came across a publication from MT offering a balancewear vest.

The problem was that I had to travel to USA if I wanted a vest. I therefore started a market research within the international medical field in order to get more information about the vest. My sister is a doctor, and she helped me in my investigation.
I was in contact with the neurologists at the Copenhagen University Hospital, the University Hospital in Munich, Germany (professor Thomas Brandt who had diagnosed me), the Ataxia Foundation of Denmark and the Ataxia Foundation of UK.

Unfortunately I only received negative feedback. Many had heard about the balance vest but no one believed in its ability to stabilize these types of balance problems.

Meeting with Cindy Gibson-Horn (CGH) – inventor of the vest

Despite all the bad publicity I had obtained I finally decided to try to get an appointment with CGH in San Francisco. She was most obliging and asked me to have a video taking of my gait and send it to her along with the official diagnosis of my sickness.

In spite of my handicap – SAS and my daughter brought me in my wheelchair to the clinic of CGH in San Francisco. It took place October 2013, and it goes without saying, that Cindy (CGH) really took excellent care of me from the moment I “rolled” into her clinic. My daughter and I were

impressed by the efficiency and professionalism of her performance. After having pushed me around and tried to get me totally out of balance for some time, Cindy said the fantastic and unbelievable words “You don’t have to sit in a wheelchair”.

Cindy then started building up a vest, which would suit me and help me in keeping my balance no matter what kind of exercise I performed. We are not only talking about normal walking but I should also walk backwards and to the sides, pick up things from the floor, reach up for things far beyond my natural height etc.

Having “worked” with me for a couple of hours and placed all kind of weights in my vest on various places on my back, shoulder, stomach and front, Cindy told me that she had finished the job and I could start walking. First I tried within the parallel bars, and here I walked normal without falling to the sides or crossing my feet. Then I asked whether I was allowed to try to walk up and down the hall space ?

“You just try”, Cindy said. For everyone who have seen my gait before such as my daughter, we experienced a miracle. I walked without any problems, and I was even able to look to the sides when walking, which I haven’t been able to do for years.

Having embraced and thanked Cindy for the incomprehensible help I walked out of her clinic – leaving my wheelchair behind.

Upon my return to Denmark I swore that I would do my best in order to arrange that BalanceWear would be introduced to the Scandinavian market in order to help other people with balance problems.

If everything goes according to plan I am happy to announce that as from June 2015
Motion Therapeutics, BalanceWear will be available in all Scandinavian countries.

Wonderful! Not only Scandinavians but also other Europeans will then only have to go to Skodsborg Physiotherapy in Denmark avoiding the long travel to USA. If they are successful most likely MT will also have other representatives appointed in more European countries.

I have deliberately postponed this testimonial for half a year. I suppose that everyone will understand that in the beginning I could hardly believe that all of a sudden I was ”brought back to life”. I am so happy to report that since Cindy put on my vest I have become even better. In my home I am now frequently able to walk without the vest and my handwriting and speech have improved. I am more capable to use my computer, and someone might even claim that my intellectual faculties have improved.

On top of all this I am so happy to report (knock the wood) that I haven’t fallen one single time since Cindy put on my vest.

All in all a SUNSHINE STORY. Apart from what I have stated in this testimonial I am only too glad to receive inquiries from interested people. My mail address is: thorkild@erritzoe.com

FINAL PRAISE to CINDY:
Congratulation Cindy for inventing your simple solution to an extremely complex problem, a mechanical balancing of one biologically very complicated imbalance.

Thorkild Erritzøe
Skodsborg, Denmark – March 16, 2014

Thanks Thorkild!
cindy

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PT Month Day 20: Sandra Jo Rampy – MS Activist – Is Running Again With BalanceWear

Posted on October 21, 2014. Filed under: Achievements, BalanceWear LSO, Exercise, Hope | Tags: , , , , |

Sandra Jo Rampy has been an avid runner and athlete her whole life and has not let a diagnosis with MS stop her. When she was diagnosed in 2002 she began setting fitness goals for herself and never gave up on her body. Today she is Chief Encouragement Officer of the Rampy MS Research Foundation (http://researchms.org/ ), an organization run by Sandra Jo and her husband Scott. Part of what keeps Sandra Jo going is BalanceWear. BalanceWear has improved her balance and stability and she calls it a life changer. This week, for the first time in 6 years, Sandra Jo will be traveling and navigating a busy airport independently thanks to her new found stability and confidence using BalanceWear. Congratulations Sandra Jo! We hope you have a wonderful trip Below is a video of Sandra Jo taking a jog in her backyard. Before BalanceWear, she was unable to control her body while jogging and had difficulty coming to a stop. She now has a smoother gait and much more control. We are so happy to see her success! https://www.facebook.com/video.php?v=884871554870422&set=vb.127437677280484&type=2&theater See how this activist is helping those with MS Website: http://researchms.org/ Facebook: https://www.facebook.com/researchms Twitter: @Research_MS

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