Ataxia: Balance-Based Torso-Weighting

Posted on August 29, 2012. Filed under: Ataxia |

I have seen 15 patients recently with ataxia from different causes; SCA6,  SCA2,  non descript SCA disease, ataxia from peripheral neurapathy, ataxia from a dilantin toxicity earlier in life, multiple small strokes, MS, and cerebral palsy.  Ataxia can result from loss of sensory information, inability of the central nervous system to integrate information or from problems with in the cerebellum and other areas of the brain. Ataxia can be very difficult to treat. However, with Balance-Based Torso-Weighting controlling thedirectional loss of balance made a difference for all but one patient. He had too much backward thrust for the weights to control. Everyone else had benefits. The benefits varied from improvement in ability to understand their speech, improved handwriting, transfers from sitting to standing (less ballistic movement – smoother accent/descent) , improved coordination in the hands and legs, increased standing balance,  to improvement in walking and confidence it their ability. One patient reported her pain was gone because her body didn’t have to move so much to control it.

It has been interesting to see what people get.

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5 Responses to “Ataxia: Balance-Based Torso-Weighting”

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Where are you located, in order to do evaluations?

Eleanore-I do assessments in Oakland, California. We do have clinicians in other locations.
Cindy

We have locations around the US. Contact me. Cindy@motiontherapeutics.com

My mother started with down beat nystagmus and is now in an electric wheelchair. I’ve recently been diagnosed with downbeat nystagmus but the neuro-ophthalmologist says it is unsure that I have inherited an SCA. Neither of us has been genetically tested; it is so expensive.

Dear Eleanore,
There are some people who have down beat nystagmus with SCA 6. I am not a specialist in diagnosis. I have treated patients with this symptom as well as dizziness with Balance-Based Torso-Weighting as well as excercises and it helped their dizziness and decreased the nystagmus. Did you find this blog from the http://www.motiontherapeutics website?

I find the earlier one works with their disability the longer they will most likely stay ambulatory. It takes work and tenacity to stick with a program but those who do benefit. I suggest you contact the National Ataxia Foundation https://www.ataxia.org/ to get more information. I would also see if you can get vestibular therapy. You can contact me directly Cindy@motiontherapeutics.com
Hope this helps. Where are you located?
Best,
Cindy


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