Spinal Cerebellar Ataxia SCA6

Posted on July 28, 2012. Filed under: Cerebellar ataxia | Tags: , , , , |

Yesterday I heard via email from Arlene so I will tell you about her. Arlene is Rolynn’s mom. She was able to walk with a walker and occasionally used a cane. Rolynn had let her mother try her vest when she first got back to Texas six weeks ago.  Arlene was able to take a few independent steps!  They were excited to see if I could get her established with a BalanceWear vest so she would be able to walk with a cane.

Arlene was much more incapacitated than her daughter but Balance-Based Torso-Weighting was able to make a difference for her. Like Rolynn she had a rotation problem; Arlene’s was at the pelvis and she had difficulty with loss of balance backwards and sideways. In addition she had difficulty with heel shin coordination and writing. She was weighted with just over a pound and a half and she was able to walk about 10 feet with someone very close by her side and occasionally giving her a slight amount of help. When I tried to get the weights situated in the vest we noticed that she wasnt as good. I worked quite a bit and then moved the weight in the back 1/8th inch and  she was much more stable again. Really just moving the weight 1/8th inch made the difference between walking unsteady to walking with much more control. The other great thing BalanceWear achieved was that Arlene stood straighted when she walked. It amazes me.

A few days back I heard from Rolynn.

“We are all doing very well. I continue to improve and the new weighting seems to be right.  I have been trying to challenge myself to do things like moving side to side.  Mom is taking more steps unaided.  She is very pleased. I haven’t spoken to Mia since we returned, but she was very encouraged when we left.

I am so thankful to have met you and cannot tell you how much you mean to my entire family.  My Mom thinks she will be able to be escorted down the aisle at my son’s wedding instead of riding on a golf cart ( it is outside).  This has been an incredible experience and has given us all hope when we thought there was none.”

I always encourage patients to see a physical therapist in their area. Yesterday I got an email from Arlene.

“I am doing great with the BalanceWear.  I will start my balance therapy on Wednesday and I am really looking forward to that.  I hope you are doing good. It was an awesome trip to Oakland. Thank you.” Arlene

The combination of BalanceWear and therapy is awesome. They can be separate but together the patient has the best chance to make positive changes.

Next week we will discuss Mia and I will show you the changes in handwriting that Mia and Arlene got immediately with the use of BalanceWear.

Until then be happy, keep active, and think positive thought about finding interventions that can help YOU:-)

Cindy

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